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Peter Writes

Hello everyone,

I hope you are noticing a few changes happening in the TAGosphere. The website is gradually being changed and kept up to date. Similarly, Facebook is too.

We have the Eureka fun day out at the National Children’s Museum in Halifax on Saturday 10th June 2017 from 11.00 to 1700. Bring your own lunch and join us in the picnic area at 13.00. There is an indoor café too. The cost is £5 per family – much reduced from the normal admission price!For more information look on our website or Facebook.

WARNING: Keep your eyes on the lookout for a day we are organising at Conkers in the National Forest in the Midlands. Look out for the information coming soon.

The Family Weekend is on its way and the Trustees are busy getting speakers, entertainers for the children, and special guests. Time flies, so I hope by now you should have it in your diaries for Saturday 21st October 2017 and Sunday 22nd October 2017.

If you have never been to a Family Weekend before let me tell you what happens – or should do! On the Saturday, we will have 4 or 5 informative talks/sessions, interspersed by teas and coffees and a buffet lunch. All during the day we will have separate entertainment for the children depending on their age range. We will also have some ‘nannies’ in to look after the under 3s.

Saturday evening there is a plated and served dinner. On the Sunday morning, we will have our Annual General Meeting. This is a legal requirement for us as a registered charity. Although important, we try to keep it as light hearted as possible. It is during this meeting we ask for members to consider coming forward as possible Trustees.

If you want to know more about being a Trustee or indeed any questions about the weekend then please phone Peter Lacey on 01530 810744 or 07989582249 or email via help@arthrogryposis.co.uk.

I hope next week to be able to give you the costs for the weekend. Be assured it will be fantastic value for money for you. Keep your eyes on the website and Facebook.

As well as all this, the social side and meeting other people, and parents with children with Arthrogryposis I promise you is priceless!

Peter Lacey
Chairman


TAG News

The TAG Map

TAG Members UK Map 2017We'd like your opinion. The spread of TAG Members is the length and breadth of the UK, and you might not know who is nearby. We'd like to help Members reach out to each other, and thought a good place to start might be a map.

Tell Us What You Think

This map is an example of what we could do. you will see that there is no personal information displayed, only a location.

Here's how it might work:

1.  TAG Members willing to be contacted by other members let TAG know and we keep a list.

2.  Any member who wishes to meet other people from TAG checks out the map to see if someone is nearby and contacts TAG and asks to be put in touch.

We have always said that TAG's greatest strength is in shared experience and getting together to talk.

Although social media such as Facebook makes keeping in touch seem simple these days, many people don't like using it. We want to ensure any Member has a way to talk to other members if they wish to.

As an added bonus - what a great map this is. Look how many of us there are!

Please let us know what you think about displaying a TAG Map, whether you'd be willing to be on a TAG Contact List. Email us using the address help@arthrogryposis.co.uk or head over to Facebook and comment there.

 


TAG Events

The TAG Family Weekend

Family Weekend - faces drawn on fingersThe TAG Family Weekend takes place on  Saturday 21st and Sunday 22nd October 2017.

We will be gathering together at the Holiday Inn, North Coventry, CV2 2HP just off the M6 at Junction 2. We've chosen Coventry because it is in the Midlands, and the hotel is easily accessible from the motorway.

Want to arrive Friday night? Last year about 13 families arrived did this, adding a greater social element to the weekend. If you're a TAG Member travelling a large distance you might want to consider adding Friday night to your stay. 

What can you expect? The individual session contents are still being worked out. We do hope an Orthopaedic Consultant will be available to bring us up to date with the latest news on treatments.

We're looking at other topics and speakers too, and you're suggestions are welcome. What would you like to hear about?  Get in touch with us help@arthrogryposis.co.uk and let us know so we can investigate.

TAG is subsidising the cost of the weekend, so keep an eye on your email for more details soon. Time to start the TAG Savings Jar!

The TAG AGM will take place on Sunday morning, 22nd October 2017.

Read about last year's Family Weekend in this short report from Peter Lacey, just to whet your appetite. Family Weekend Report.

 

Eureka!

Eureka No, we haven't discovered the meaning of life. Join us for a TAG Family Event at Eureka, The National Children's Museum Discovery Road, Halifax HX1 2NE for Saturday 10th June.

It is a Changing Places standard accessible facility, with adjustable changing bed and tracking hoist. All staff have also received accessibility training if you have any queries/concerns. Visit the Eureka website for a look at what's on offer.

The day begins at 11am, through to 5pm. You are welcome to bring your lunch and join us in the outside picnic area at 1pm. There is also an on-site cafe.

 Cost: £5 per family.

If you are, or would like to attend, please let us know by email help@arthrogryposis.co.uk

 


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