events

Welcome:                             10.00am – 10.30am

Activity Room:                      10.00am – 5.15pm

Amy – Driving Mobility:  10.30am – 11.30am

BREAK:                                    11.30am – 11.45am

Sarah Ford:                           11.45am – 12.45pm

LUNCH:                                  12.45pm – 1.45 pm

Omeo:                                      1.45pm – 2.45pm

BREAK:                                   2.45pm – 3.00pm

Hayley at Exoskeleton:    3.00pm – 4.00pm

Nutty Knots:                         3.00pm – 5.00pm

BREAK:                                   4.00pm – 4.15pm

Sarah Rayment:                  4.15pm – 5.15pm

DINNER                                  6.15pm – 12.00am

ENTERTAINMENT, RAFFLE & AWARD PRESENTATION:

SATURDAY’S SESSIONS:

Amy works for Driving Mobility – They can help you with assisted driving, accessibility, and independent living.  They can also explain about filling out the application forms.

Sarah Ford – Transition to adult services at Oswestry Hospital. Sarah will discuss the process of a child transitioning from children’s services to adult’s services.

Omni Wheelchair – The world’s only hands free, self-balancing active power chair. The Omeo’s powerful two-wheeled, self-balancing platform allows you to interact with the world in a new way. With balance-based movements, Omeo enables you to express your individuality in a way no other mobility device allows.

Hayley Philippault at Exoskeleton – Hayley is the Technology Projects Manager at Duchenne UK and currently leads on the SMART Suit and Dream Wheelchair projects. Hayley has designed and produced numerous assistive products currently on the market and is committed to using design to overcome barriers and improve lives.  Duchenne UK has developed a ‘smart suit’ which also brings hope to those with spinal muscular atrophy, Duchenne MD and SMA – it is set to be completed by December, when it will be tested by a panel of youngsters living with DMD and SMA.  Worn like a slimline backpack, the suit is powered by tiny motors and rechargeable batteries and utilises ‘twisted string actuator’ technology, patented by Stanford University’s research unit, SRI International.  It mimics muscles by using a thread around the arm that contracts, which, with the motors, lifts a limb after the user activates a control linked to their index finger.  Duchenne UK hopes the device can be made available in the mainstream market by 2025 and it is also said to have ‘huge potential’ for helping stroke patients, and those with multiple sclerosis and motor neurone disease.

Nutty Knots – One of our new members, Jeff Bathurst has kindly agreed to hold an activity showing members how to make keyrings out of paracord. Paracord is parachute cord, which is a lightweight nylon kernmantle rope originally used in the suspension lines of parachutes. Members can then take their keyrings home with them. 

Sarah Rayment – Our trustee Sarah is an experienced primary teacher of 11 years. She has always been passionate about SEND provision in schools and ensuring pupils get the best support possible. She believes that both pupils and families should feel supported through what can sometimes be a complex system. In 2022 she started training as an operational SENDCo and in September 2023 she starts a new role as full time SENDCo over two schools. During this workshop Sarah will provide parents with advice on navigating the SEND system in education as well as providing the opportunity for parents to share their experiences and ask for advice. 

This year we will be providing an activity room, where board and card games, paints, paper, colouring books, colouring pencils, and different sports games will be provided. The Nutty Knots activity will also take place in this room. This will allow you to socialise, meet new friends, catch up with old ones and have lots of fun. 

The amazing Sweetheart Nannies will be back with their crèche on the Saturday and Sunday day and babysitters for the Saturday night, giving you the chance to relax, socialise and have lots of fun on the karaoke, and dancing along to the music provided by Nikkita who DJ’d for us the last couple of years.