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Trustees

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TAG Board of Trustees

Peter LaceyPeter Lacey - Chair

I was/am mainly affected in my back and legs and was operated on very aggressively – by today’s standards – and successfully. I was lucky and had a normal education.

I worked in the finance side of a couple of companies in the UK. Then I got a job working in Papua New Guinea for their government. Pat and I loved it there for nearly eight years and both our sons were born there. I also worked in the Middle East for a couple of years. We decided to come home and we ran our own businesses.

I became involved in TAG over 20 years ago and in that time, until 11 years ago, I had been a committee member, treasurer, and Chairman.

 

Helen Glassborow

Helen Glassborow – Secretary

I am a chartered building surveyor. My daughter Meggie is 14 years old and is affected by Arhthrogryposis in both arms and legs and we became members of TAG shortly after she was born. I also have some experience as a trustee /secretary for a local charity for disabled children.

I decided to become a trustee because my family has benefitted greatly from TAG over the years - the contact, support and events - and I wanted to see it not just continue, but flourish.

 

Michael RamsbottomMichael Ramsbottom - Treasurer

I am 36 and live in The Lakes. I have been in accountancy for 20 years so consider myself well placed to be the Treasurer of TAG. I learned of TAG after meeting my girlfriend Ana, who has AMC. We went to the 2016 TAG AGM and the delight on her face as she saw people with the same condition as her was a moment I shall never forget.

I have a cat called Jess or rather she has a human called Michael. In my spare time I enjoy playing the guitar and riding my Harley around The Lakes.

 

Charlie Zivanovic

Charlie Zivanovic 

I believe being labelled as AMC, should be like being labelled naughty, excited, challenging and headstrong. My motivation comes from really thinking outside of the box and shaping organisations to level the playing field for those who are disadvantaged by society.

I have created and run successful youth and community facilities, designed and organised training events and advocated for change on an individual and organisational level. I am looking to use my knowledge and experience to provide support to TAG and its stakeholders. I relish innovative ways of engaging, particularly in the current budget strapped, high demand, high expectation climate in a way that supports TAG and it’s members.

I am a Mother to Emma and Ben, grandmother to Charlie, Lily and Finlay, married to Stevan and live in West London.

 

Donna Davis

Donna Davis

Hello, my name is Donna Davis, I live in Wales with my husband and 2 children. I also have 2 step sons.

I am a qualified level 2 nursery nurse and have worked voluntary for Home start and in numerous schools and crèches with children between the ages of birth and 10 years old. I have previously studied my level 3 in childcare but unfortunately had to give up 1 month before qualifying due to my health.

I have a lot of spare time and commitment that I can offer to TAG.

 

Hailey Nobbs

Hailey Nobbs 

My name is Hailey. I was born with AMC in 1991. I now live with my husband, one year old daughter and three Chihuahuas. I also have a 13 year old brother and 8 year old sister who I have a very close relationship with.

I have a degree in Early Childhood Studies and I am currently training to be a counsellor. Since finishing my degree in 2013 I have unfortunately been unsuccessful gaining employment. I would describe myself as a quiet, caring and passionate person who loves learning and exploring.

In my spare time I love to stay home; watching TV/films, colouring, textiles, origami and playing games. I also love exploring nature and wildlife, as well as spending quality time with my family.

 

Gail Newton

Gail Newton

I was born with my legs all folded up and had many surgeries to straighten them, I have worn full leg callipers since I was 3 years old. I did not meet anyone else with Arthrogryposis until I was almost 40 when I attended my first TAG meeting. I loved it and have so enjoyed getting to know many people who cope with issues as I do and still thrive in life. TAG events have very much become a priority for me.

I am married to a very supportive husband and we have 3 children in their late teens/early twenties who all have grown up not seeing my disability as an issue but looking out for me. It is now them pushing me in my wheelchair rather than me pushing them in the buggy!!

 

Ana Crome

Ana Crome

I was born with AMC affecting my arms and my legs. I have had lots of physio and operations to help me have small movements in my arms, and to have the ability to walk.

I live alone and have an amazingly supportive partner. I went to my first AGM with TAG in 2016 and loved it. Great to meet others like myself. I love being part of the TAG family