The
Arthrogryposis
Group
The
Arthrogryposis
Group
Who Is TAG?
The Arthrogryposis Group are a national UK charity for people affected by Arthrogryposis Multiplex Congenita (AMC), a term used to describe over 300 conditions that cause multiple curved joints in areas of the body at birth. Arthrogryposis is not very well known among health professionals or the general public. The number of doctors who have the knowledge and/or experience of AMC is low and we want to change this.
TAG's Goals
- To provide support and information to those with Arthrogryposis and their families
- To set up as many children’s TAG clinics throughout the UK as we can
- To send out as many leaflets to medical professionals so they can help and support their patients or future patients with Arthrogryposis
- We hold small regional events all around the UK for our members to attend, talk and have fun while supporting each other
- We hold a family weekend every year, allowing our members to meet each other, talk and relax. It also gives them the opportunity to speak to the medical and non-medical professionals who are attending that weekend to give talks on their specialised subjects
New To Arthrogryposis
If you, a friend or a loved one has just had a diagnosis for a type of Arthrogryposis, or you are looking for more information on the conditions and treatment options, this section features information to help.
What is Arthrogryposis?
Arthrogryposis Multiplex Congenita (AMC) is a term used to describe over 300 conditions that cause multiple curved joints in areas of the body at birth. It varies from person to person with the commonality being stiff joints and muscle weakness.
What is Arthrogryposis?
What We Do
TAG Clinics
The Arthrogryposis Group are very lucky to work alongside various Orthopaedic Consultants throughout the U.K in forming our specialist TAG clinics. Depending on the severity of your child’s disability you may see a Physiotherapist, Occupational Therapist, Neurologist, or dietician at the clinic. as well as your Occupational Consultant.
Fundraising
Like all charities, we need funds to continue work and we rely entirely on voluntary contributions. Without this, we cannot give the support and information that newly diagnosed families desperately need upon hearing the news that their baby has Arthrogryposis. Neither can we help the grown-ups that turn to The Arthrogryposis Group when they learn for the first time what has been ‘wrong’ with them and that they are not alone anymore.