Terms of Use

These Terms of Use apply in respect of your use of the Arthrogryposis website – www.arthrogryposis.co.uk

Who we are and how to contact us

Arthrogryposis.co.uk is a site operated by Arthrogryposis (“We”).

We are a registered charity (charity no. 1164158) Our registered address is at the bottom of the page

You can contact us by email, phone or post. 

Use of our website

Our privacy policy and cookie policy also apply to your use of our website.

Using our website means you agree to these Terms of Use, our privacy policy and our cookie policy in full. You are also responsible for ensuring that anyone who accesses our website through your internet connection is aware of these terms of use and other applicable terms and conditions and that they comply with them. If you do not agree to these Terms of Use, please do not use our website.

Our website is aimed at people in England and Wales; we cannot confirm that the content available on our website is appropriate for use or available in other locations.

We can’t guarantee the accuracy of the information on our website

The content on our website is provided for general information only. We try to ensure that our website is accurate and up to date. We may sometimes make mistakes and can’t guarantee the accuracy of the information on our website or that you’ll always be able to access it. We don’t accept liability for errors or omissions or for any reliance you place on the information on our website.

We are not responsible for websites we link to

Our website contains links to third parties websites for your information only. We have no control over the content of those sites or resources and we don’t endorse or accept liability for the content of them.

Our website links to pages maintained by us on third-party social media websites. When you use those pages, you must do so under their terms of use and these Terms of use.

Rules about linking to our website

You may link to our website pages that are open to the public, provided you do so in a way that is fair and legal and does not damage our reputation or take advantage of it.

You must not establish a link in such a way as to suggest any form of association, approval or endorsement on our part where none exists.

We reserve the right to withdraw linking permission without notice.

The website from which you are linking must comply in all respects with the content standards set out in these Terms of Use.

Our website must not be framed on any other site. If you wish to link to or make any use of the content on our website other than that set out above, please contact us first.

How you may use material on our website

We are the owner or licensee of all copyright and other intellectual property rights in our website and in the content published on it unless otherwise stated. All content is protected by copyright laws and treaties around the world. All such rights are reserved. Any unauthorised use of our website’s content may infringe on our or a third party’s rights.

Unless we agree in writing, you must not use any content on our site in our website in any way, except:

  • to ask about us and our services
  • to download and temporarily store one or more pages of our website for your viewing on a personal computer or terminal; or
  • for private or non-commercial academic research

If you use any material on our website for any of these purposes you:

  • must not change documents or related images
  • must not use images separately from the accompanying text
  • must include our copyright and trademark notices on all permitted copies

If you quote our website’s content in a publication associated with your private or academic research you must include the copyright notice contained within it or, if there is none, include “© Copyright Arthrogryposis. All rights reserved” and the year it was obtained from our website.

If you wish to use any material on our website in any other way, including for commercial purposes, please Contact Us.

We are not responsible for viruses and other harmful material

We don’t guarantee that our website, its servers, downloadable files and emails are free from viruses or other harmful components.

You are responsible for using suitable anti-virus and firewall systems to protect your computer and equipment. We do not accept any liability for any loss or damage as a result of any infection of your computer and equipment.

You must not:

  • introduce, or try to introduce, any virus, Trojans, worms, logic bombs or other contaminants to our website or any of its software or systems that is malicious or technologically harmful
  • attempt to gain unauthorised access to our website, the server on which our website is stored or any server, computer or database connected to our website
  • try to weaken or damage how our website works, whether by helping to organise, or taking part in, a denial of service attack or otherwise, or
  • try to access, alter, de-compile, reverse engineer, destroy or tamper with any part of our website, its software or our systems

By breaching this provision, you would commit a criminal offence under the Computer Misuse Act 1990. We will report any such breach to the relevant law enforcement authorities and we will co-operate with those authorities by disclosing your identity to them. In the event of such a breach, your right to use our website will cease immediately.

Our website is not for commercial or business use

Please note that we only provide our site for domestic and private use. You agree not to use our site for any commercial or business purposes, and we have no liability to you for any loss of profit, loss of business, business interruption, or loss of business opportunity.

Breach of these Terms of Use

We may determine, at our discretion, whether there has been a breach of these Terms of Use.

When a breach of this policy has occurred, we may take such action as we deem appropriate. We may:

  • immediately, temporarily or permanently withdraw your right to use our website
  • immediately, temporarily or permanently remove or edit your posts or material you uploaded to our website
  • give you a warning; undertake legal proceedings against you for reimbursement of all losses and costs on an indemnity basis – including, but not limited to, reasonable administrative and legal costs – resulting from the breach
  • take any other legal action against you
  • or disclose information to law enforcement authorities

We exclude liability for actions taken in response to breaches of this acceptable use policy. The responses described in this policy are not limited. We may take any other action we reasonably think is needed.

Changes to these Terms of Use

We may change the Terms of Use at any time without notice. Every time you wish to use our site, please check these terms to ensure you understand the terms that apply at the time. By continuing to use our website you agree to be bound by any changes we make to these Terms of Use.

We may make changes to our website

We may update and change our website from time to time.

We may suspend or withdraw our website

Our website is made available free of charge. We do not guarantee that our website, or any content on it, will always be available or be uninterrupted. We may suspend or withdraw or restrict the availability of all or any part of our website for operational reasons.

Trademarks, logos and service marks

Trademarks, logos and service marks, used on our website, whether registered or unregistered, are the property of, or licensed to, Arthrogryposis. You are not permitted to use them without our approval.


If we are prevented from enforcing any of these Terms of Use it will not mean we cannot enforce the rest of them, which will continue to apply. These Terms of Use will be governed by English law. The courts of England and Wales will have exclusive jurisdiction to hear disputes about these Terms.

Feedback and complaints

We welcome your comments about our website. If you find anything incorrect, or not working or want to say anything else, please email help@arthrogryposis.co.uk

Please Contact Us with any questions.

This policy was last updated: June 2023